2岁时,美国女孩朱莉安娜被诊断患有严重的腓骨肌萎缩症——一种不可治愈的神经性疾病,这种病会渐渐蔓延到整个身体,最终夺去病人的生命。到4岁时,朱莉安娜的肌肉已经萎缩到四肢完全无法动弹,无法吞咽食物,连呼吸和咳嗽也变得越来越困难。每一次小小的感冒都有可能致命,因为痰液 At the age of 2, the American girl Juliana was diagnosed with severe Charcot-Marie-Tooth Disease - an incurable neurological disease that gradually spreads throughout the body, eventually killing the patient’s life. By the age of 4, Juliana’s muscles have shrunk to the limbs, unable to move completely, unable to swallow food, and even breathing and coughing have become more and more difficult. Every little cold can be fatal because of sputum