对于这种罕见病来说,基层医院往往漏诊、误诊,唯一有效的药物又在医保范围之外,很多患者尤其农村的患者无法负担。渐冻人症是种罕见病,基层医院很少接触到这类患者,其表现与多种能引起肌肉萎缩的疾病相似 For such rare diseases, primary hospitals often misdiagnose, misdiagnose, and the only effective drugs are out of coverage. Many patients, especially those in rural areas, can not afford it. Asymptomatic human disease is a rare disease that is rarely seen in primary hospitals and behaves in a number of ways similar to those that cause muscle atrophy