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问:编辑同志,我是血友病患者。血友病是一种由于基因缺陷而引起的遗传性出血性疾病,属于罕见病,发病率大概在0.5—1/10000之间,目前暂无根治方法,只能对症用药治疗。但沉重的医药费一般人是根本无法承受的。其实,如果血友病患者能得到及时的治疗,是可以基本能像正常人那样生活和工作的,可以减少社会和家庭负担,成为一个对社会有用的人。若得不到及时治疗,就对社会和家庭造成巨大的后续负担。据说,一些省市对血友病患者都有减免优惠待遇。请问:广西血友病患者如何享受基本医疗保险待遇?
Q: Editor’s Comrade, I am a patient with hemophilia. Hemophilia is a genetic hemorrhagic disease caused by genetic defects, a rare disease, the incidence of about 0.5-1 / 10000, the current no cure, can only symptomatic treatment. However, the heavy medical expenses of ordinary people are simply unbearable. In fact, if patients with hemophilia can be treated promptly, they can basically live and work like normal people, reduce their social and family burdens and become a socially useful person. Without timely treatment, it will create a huge subsequent burden on society and families. It is said that some provinces and cities have preferential treatment for people with hemophilia. I ask: Guangxi hemophilia patients how to enjoy the basic medical insurance benefits?