上世纪60年代初,在上海西南角的一个普通知识分子家庭一个婴儿出生了,这孩子就是我。由于先天性双目失明,我从小就生活在漆黑的世界里。父母为了治好我的眼病,带着我跑遍了上海和南京的所有大医院,拜访了许多知名的眼科专家。医生得出的结论是相同的:孩子患的是视网膜色素变性(RP),这种病目前全世界都无法医治。听了这样的结论,全家人的心都要碎了。 In the early 1960s, a baby was born in a family of ordinary intellectuals in the southwest corner of Shanghai. This child is me. Due to a congenital blindness, I grew up in a dark world. In order to cure my eye diseases, my parents traveled with me through all major hospitals in Shanghai and Nanjing and visited many well-known ophthalmologists. The doctor concluded that the same thing is true: children suffer from retinitis pigmentosa (RP), which is currently untreatable in the world. After listening to this conclusion, the whole family’s heart is broken.