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目的分析Tourette综合征(Tourette syndrome,TS)儿童的主观生活质量和社会适应能力,为临床治疗提供指导依据。方法采用儿少主观生活质量问卷(Inventory of Subjective Life Quality,ISLQ)、儿童行为量表(Children Behavior Checklist,CBCL)、儿童适应行为评定量表(Social of Adaptive Behavior,SAB),对112例TS儿童(≥8岁)的主观生活质量和社会适应能力进行对照研究。结果 TS患儿ISLQ中有7个维度得分明显低于对照组(P<0.01);行为问题得分明显高于对照组(P<0.05)。适应能力商数(adaptability quotient,ADQ)低于对照组(P<0.05),其中认知功能、社会/自制两项与对照组差异有高度统计学意义(P<0.001)。结论 TS儿童的主观生活质量和社会适应能力存在诸多问题,及时进行合理干预,有助于促进TS儿童身心康复。
Objective To analyze the subjective quality of life and social adaptability of children with Tourette syndrome (TS), and provide the basis for clinical treatment. Methods Using ISLQ, CBCL and SAB, we analyzed 112 children with TS (≥8 years old) subjective quality of life and social adaptability of the control study. Results The score of 7 dimensions of ISLQ in children with TS was significantly lower than that of the control group (P <0.01). The score of behavioral problems was significantly higher than that of the control group (P <0.05). Adaptability quotient (ADQ) was lower than that of the control group (P <0.05). There were significant differences in cognitive function, social / self-control and control group (P <0.001). Conclusion TS children’s subjective quality of life and ability to adapt to the society there are many problems, timely and reasonable intervention, contribute to the physical and psychological recovery TS children.