《中国摄影》:在完成“非典后遗症患者”项目后,什么原因使你选择拍摄罕见病患者?张立洁:我供职的《中国残疾人》杂志社隶属于中国残联,因此有机会接触和残疾人相关的报道题材,这也是我很多摄影项目的线索来源,罕见病患者也是这样。在认识了一些不同类型的患者后,他们与众不同的生存状态、精神状态都很吸引我。他们往往过得并不如意,对生的渴望就格外强烈,这也是某种特殊 “China Photography”: After completing the “SARS Patients” project, why did you choose to take pictures of rare patients? Zhang Lijie: The “China Disabled Persons” magazine that I serve belongs to the China Disabled Persons’ Federation and therefore has the opportunity to get in touch with People with disabilities report the subject, which is the source of many cinema photography sources, as is the case of rare patients. After recognizing a few different types of patients, their unique state of existence and mental state are very attractive to me. They are often unhappy flies, the desire for life is particularly strong, it is also a special